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Fall Break (10/17/17)

Fall Break (10/17/17)

Good morningšŸ’œĀ I havenā€™t been on in a while so I thought I would say hello!! As far as an update, not much new just the usual. Tired, nauseas, body aches etc. Iā€™m still on the same chemo regimen Iā€™ve been on since July getting it every other Monday plus my trial meds everyday. Although my tumor markers are the highest they have ever been, we are staying the course as of now. I meet with my doctor next week and…

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Don’t need a conditioning mask :) (9/19/17)

Don’t need a conditioning mask :) (9/19/17)

The look I had when the cashier at Sallys asked me if I would like to by a great conditionting hair mask for 99 centsā€¦.šŸ˜£Ā um I donā€™t have any hair lol I have a good sense of humor so we laughedĀ šŸ˜‰Ā Hope you all are having a wonderful day!! Oh and shout out to my sis in law for my new scarf Iā€™m wearing in this picšŸ˜Ž Ā 

Long day of appointments (9/12/17)

Long day of appointments (9/12/17)

Good morningĀ šŸ’œĀ Here is my update for the moment! So yesterday I had a scan to just see how things are going. I had prepared mentally for the absolute worst as Iā€™ve become pretty regular to bad news. It was a long day with my first appt at 8am for the scan then Dr. Appt. At 10:20 to discuss results and pending on those results chemo after. So according to the doctor my scan showed all of my tumors have grown…

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Madness and Emotion (9/2/17)

Madness and Emotion (9/2/17)

HellošŸ’œĀ popping on Facebook for a little week update and I suppose a side journal entry of the madness and emotion going on in my head..could be lengthy (sorry in advance) First I want to say a huge Thank you to everyone who donated, planned and took the time to attend the adult prom last weekend. I was completely blown away from the generosity and love that was expressed at the event.ā¤Those events are very awkward for me. Iā€™m sure it…

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Lowering the Dosage (8/29/17)

Lowering the Dosage (8/29/17)

Hello! Today was treatment day. I had an appointment with my IU oncologist to discuss my treatment. He decided to lower the dosage once again so now at a total reduction of 40%. He is hoping by reducing again I can tolerate it better. He said that if I donā€™t we are going to have to switch plans. He also decided to move up my scans and I will have them sometime the end of next week. As of now…

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FAQ’s (8/16/17)

FAQ’s (8/16/17)

Helloā™” popping in with an update and answers to frequently asked questions lolā€¦. This may end up being long so just a warningšŸ˜‰Ā Alright first with the update: My last treatment was last Monday. It was a reduced infusion by 20%. I came home feeling like I may have a better outcome as far as side effects but I was wrong. I actually was very very ill to the point I felt like I may need to go to the hospital…

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Chemo Day (8/7/17)

Chemo Day (8/7/17)

Chemo dayā€¦Iā€™m not feeling the best still but forging ahead!! Last time I was on chemo I lost a ton of hair but was able to keep from shaving itā€¦this time itā€™s coming out like crazy, in this pic you can see where my scalp is showing.. It is what it is and I will surviveĀ šŸ˜‰Ā Going to hold out as long as possible but itā€™s so messy! So todayā€™s plan is all my chemo is lowered by 20%. I still…

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Slow Recovery (8/2/17)

Slow Recovery (8/2/17)

Good evening/morning! My insomnia has the best of me at the moment. So thought I would stop in for a quick updateā€¦ So since my last post itā€™s been a slow recovery. For some reason my 1st treatment back on chemo with the trial drug really knocked me down. I was scheduled for treatment again this past Monday. I was still feeling not so good and had decided to have a long talk with my trial nurse about my weeks…

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Cancer is so vicious! (7/19/17)

Cancer is so vicious! (7/19/17)

Hey guys itā€™s been a while so I thought I would stop and give you all an update. As I may have mentioned before, I started a clinical trial drug last week. Before I started I got a CT scan just so we could have a clear base to see exact changes when I get scans around the end of August. Whatā€™s crazy is that there was only around 3 weeks since the scan before and my most recent scan…

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What’s next…. (6/22/17)

What’s next…. (6/22/17)

Hey friends hereā€™s the latest.. I met with my IU oncologist on Tuesday to go over whatā€™s next. The plan is for me to go back on a chemo formulation Iā€™ve been on before along with a clinical trial drug. That drug is supposed to make my tumors more sensitive to the chemo. All of this will start July 10th and I will have to have all treatments at IU. The trial drug is a pill I will take 3…

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